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Disappointments

As I watched the Gay and Lesbian Mardi Gras parade wend its way up Oxford St, I paused for a second of reflection as I saw the group for PFLAG (Parents and Friends of Lesbians and Gays) marching up the street under the PFLAG banner. I admit to a tinge of envy as I pondered how proud both the parents and the children must feel at being able to express them selves so easily, and be so comfortable with each other’s sexuality.

This is not a privilege I have ever known with my own parents. Growing up as I did through the fifties and sixties, my parent’s generation was not given to liberal attitudes, and the prospect of having a gay son in the family would have meant automatic exclusion from the family unit, a prospect not many of us would have favoured. During the 70s, I had amongst my friends several gay men. Though not being out myself at this time, I enjoyed their company, finding them a constant source of amusement with their camp witticisms, and enjoying many social occasions at their homes. On the one occasion when one of them came visiting at home with a group of friends, my father told me, in no uncertain terms, that he was not to cross our doorstep again. This was only one of many rifts between my father and myself over the years. Thankfully, I was old enough to stick up both for myself and my friend, though making sure I did not ‘out’ myself.

My mother had left home when I was eleven years old, and shortly after my brother was killed. My mother accepted guilt for this happening right up to the present. She used the classic “well, maybe if I’d never have left…”, which is pretty inconsequential at this stage of the game. My mother was also part of the homophobe generation, though she seemed to have had little compunction about buying me dolls as I grew up, on the proviso that I never told my father.

My father killed himself in 1978, and I moved to Campbelltown with my stepfamily for a short period of time whilst the legalities of his death were sorted out. I accidently ‘outed’ myself to my flatmates when, on packing a bag for me to take down to my father’s funeral, they encountered some gay porn hidden in the drawers at home. So the cat was out of the bag in respect to that subject – at least with them. They weren’t particularly shocked, but told me I should tell my mother, who I had reconnected with only a short time earlier. The reconciliation with my mother had been shaky at best, and with her having remarried a man who reminded me very much of my father, I wasn’t really prepared to tackle the issue of being gay.

The opportunity came in 1980 when I went to live in Melbourne for a couple of years. I kept contact with my mother, and my old flat mates. While living there, I came out with a bang, and made short work of catching up on the life I had been denying myself, for all of my mature life.. There is nothing quite like the freedom you get from being far away from everyone you know. The flat mates kept telling me to be honest with mum. I kept putting it off. When mum found out I was gay, it wasn’t me who told her. My flat mates accidentally outed me.

When I moved back to Sydney, I never really set up an intimate relationship with my mother. I think all the years apart had played a role in distancing me from her. Anyway, she had established a life of her own with Ray, and produced a daughter. If we weren’t distant enough already, eighteen years between my half-sister and myself certainly didn’t help shorten the gap. I never really felt comfortable at their home in Toongabbie, and over the years my visits got less and less, until they were finally reduced to nothing more than phone calls. I did attempt a single reconciliation, and had my doubts about its success fulfilled . Over a very nice lunch in the city, a situation where I thought the two of us could discuss the issue of gay like mature adults, I gave up after having to sit through the old “it’s my fault you are like this…” line. I realised then that we were beyond reconciliation. But the saddest aspect of it for me wasn’t her inability to accept me as a gay person, but the fact that she would never really know me, the person I was, or the person I was to become. I wasn’t even really sad, just angry that she just would not accept things as they were.

In 1996, I became very ill, and ended up in Prince Henry Hospital, with a prognosis of about two weeks to live. However, new drug regimes and a lot of Capricorn stubbornness and determination turned the tables in my favour. I was released from hospital, and a whole new era of my life began.

My mother knew nothing of any of this. She knew nothing about my brush with death, nor the numerous operations I had over the next couple of years to try to save the sight in my eyes. She knew nothing of the thousands of injections I had been given, the litres of blood taken, or the 150 odd tablets I took every week to stay alive. Nor did I want her to know. Her reaction to me was that it did not exist. She lived in a vacuum- packed little suburban world, and things such as ‘gay’ could never break through the seal of that vacuum. Perhaps the saddest part of this was that she never got to be involved in my new life. She knew little of my community work, nor of my battle to return to work, of the success I was making of my writing, and my continuing attempts to reeducate myself so I could move in new directions. I felt particularly disappointed when I was given my UTS offer, and knew I could not share it with her.

The crunch came at the end of 1997. She had been having a number of tests, and had been diagnosed with bladder cancer. I thought it was terrible, but was still recovering from my own battles with ill health. She was admitted to hospital to have her bladder removed, and it came as quite a shock to me to find out she was there, as my step father never notified me. I rang him at Toongabbie to enquire about her health. He shocked me by demanded that I go out to Westmead and visit her. It was Christmas Eve, and I refused. I slammed the phone down. I knew he would go to the hospital and create a scene, whether I went to visit or not. As far as he was concerned, I should have been the loving, doting son. I wasn’t, and couldn’t be. I rang mum in the hospital, wished her a ‘Merry Christmas’, and that was the last time we ever spoke. She has never rung me, I have never rung her. I feel sad that it had to come to this, but I don’t have any regrets.

I envy those people walking up the street because they know how to love and accept what is. It may have been a battle, they may still not understand what it is all about, but they support their children in the most dynamic way, by walking up that street and declaring their support in public.

It was perhaps an odd anachronism that my partners’ family was more accepting of our relationship than my parents could even have considered. I have been accepted into their household, and I’m treated every bit as part of the family, though we are no longer together.

But I still wish that my parents had just taken the time to try to understand, not to be necessarily all over me about it, but at least accepting of me as being their child no matter what my sexuality. They have never allowed me the privilege of feeling like I ‘belonged’ to them in any sense of the word.

I know only too well that when my mother dies (if she hasn’t already), there will be no one to call me and let me know. To me, that is perhaps the greatest sadness of all.

Tim Alderman
(C) 2010

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The Long Search

We waste so much time looking for what is right under our noses! Look for reasons for our existence, justification for our lives. We need to accept what is, and be thankful for what is given to us every day. We need to learn to appreciate just what is!

At 23 years of age, I went searching for God, and didn’t find him.

I am still looking.

What did I find instead? Well, you can’t hide forever in a monastery, to start with!
I always insisted I had a vocation. Most Catholics do at some stage of their lives. Heavily influenced as I was by Marist Brothers, Discalced Carmelite Fathers and Franciscan Friars, by retreats run by Redemptorist Fathers were such a thrill…not! it is little wonder that I started a drift toward the religious life in my early teens. There has always been this feeling that, as a heathenish Protestant wandering the lowland of faith, once I became a Catholic I was suddenly floating through the rarified air of Catholic piety. I must confess to being humbled at the sanctity that was suddenly available to me through the contemplative monastic life.

Some decisions in life require more emotional input than others. The decision to join the Community of St Thomas Moore was one of those with an emotional base. I am, by my very nature, a contemplative. If I had not been Christian, I probably would have run away and joined a Buddhist Zen community. The decision to enter the tough life of a contemplative monk was one that suited me well. It fulfilled a spiritual side of my nature that I had otherwise found empty. In silence, chant, work and prayer, a huge spiritual chasm was, supposedly, filled.

In the monastery, I found the “Powerhouse of Prayer” that is the essence of the monastic life, and is no better evidenced than in the community life of contemplative monks and nuns. This total overturning of ones self, of emptying out all that was unnecessary in ones life and replacing it with a concept of God I found to be a truly freeing experience. In the community religious life, I found in miniature a model of what the wider community could be, if they embraced ideals outside of themselves. With the rest of the community, I practiced selfless acts of community work, of communal prayer and life, which opened me up to a greater concept of what existence, God, spirituality and religion (both the latter as separate identities) were about.

But they are also good places to hide, to shut out the real world and convince yourself that you are something other than what you really are. I found this out the hard way.

Just short of my first vows, I had a crisis of faith. Why was I really here? What was I hiding from? Was I using spirituality as a scapegoat to shirk responsibilities in the outside world? Was I deceiving myself? This last question was the one that tipped the balance. The decision to leave the community was not made over a long period of time. In fact, the situation surrounding it is as clear to me today as it was on the day that I made it. In retrospect it is almost romantic. The monastery (an old convent given over to the Benedictine monks to found a new branch of the order) was situated at Leura set right at the top end of a valley. I went for a wander around the grounds on a very cold, winters morning. I stopped at the end of the monastery grounds and looked down into the valley. Mists were crawling in along the valley floor and had just started climbing the valley walls. It was there, at that instant, that I realised I was hiding here, trying to make a life that I may have desired, but which wasn’t really ever going to be mine.

I left the community a week later. Life then proceeded to unfold the way it should. I went to Melbourne, and ‘came out of the closet.’ This is what I had always been hiding from, and when I eventually made the decision to take up my place in the gay community, I found it a fulfilling one, though more in a carnal, materialistic sense than a spiritual one. I have no complaints about that.

I miss the monastery still. I probably always will. But I now realise that no amount of devout prayer, no endless chanting of mass and the divine hours, no pious clacking of rosary beads can hide the person you really are. It is not good to hide your light away.

Questioning the existence of God, of the relevance of religion itself comes over time. When you sit down and evaluate what faith and religion are all about, you will find them wanting. When you read, research and assess what religion really is, it fails to come up to expectation. One could blame human nature itself, but when we as people allow what religion dishes out, how religion itself allows hypocrisy, hate, disdain, discrimination, stigmatisation , alienation and false hope to be its credo, then it really has a lot to answer for! As for it being a matter of personal faith, then there are real problems that people are having their vulnerability exploited! Religion has become a conduit for hate. Just look at it’s history!

It is far too easy to say that good people exist within the framework of religion. The reality is that, without religion, these people would still exist. Faith is not the harbinger of goodness and charity! Those traits exist within people themselves! You don’t need God to make that happen, nor for it to exist. And as for being an Atheist? They seem to spend way too much time defending why they don’t believe in anything, instead of just not making an issue of it. There is a standing joke that you can always pick a vegan because the will make sure you know! Atheists are the same!

So, does one really need faith, really nerd religion to fill in a spiritual yearning, a need to find something greater than ones self? I don’t believe so. I truly feel sorry for the religious fanatics who believe that this life should be an absolute misery, a bleak, desolate preparation for the life to come after death! Really! That is our sole reason for being here? A dark, cold crawling toward something that, in all probability, doesn’t exist? What a sad state some have come to. Like those who see life as a burden, or as something to be lived with no joy or light, they never take the time to stop and look. Our true spirituality can be found by doing nothing more than being ourselves, living our lives to the fullest, drawing from experience, causing no one harm, letting people get on with their lives as they allow you to get on with yours.. Look for the beauty and goodness around you. Live your life for the now, not for the unknowable! Spirituality lies within the simplest things – the unconditional love of a dog; the beauty of a flower; the caress of a lover; a feeling of fulfillment for a job well done, or a small act of charity towards another. It lies in bird song, butterflies wings, sunlight, and in just being! You need look no further than yourself! To quote Neil Diamond – I am, I said!

I never did find God. I did find myself!

Tim Alderman
Copyright © 2014

Weighted!

According to the 2013 report from the Bureau of Statistics, 63% of Australian adults are overweight or obese. An estimated 280 Australians develop diabetes every day. The 2005 Australian AusDiab Follow-up Study (Australian Diabetes, Obesity and Lifestyle Study) showed that 1.7 million Australians have diabetes but that up to half of the cases of type 2 diabetes remain undiagnosed. By 2031 it is estimated that 3.3 million Australians will have type 2 diabetes (Vos et al., 2004) – stats from Diabetes Australia. These statistics are nothing short of frightening. Every day we are inundated with conflicting impressions – both in reality and in the media – of body image. On the one hand we have a population becoming so obese it is bordering on terrifying. If the trend is not halted, the cost of health care is going to spiral up at a frightening rate. On the other hand, we are inundated with images of sculpted 6 and 8 packs, biceps and pecs that are almost impossible for us to obtain, let alone maintain. They fill my newsfeed with promos from gyms, supplement companies, models, celebrities, health and fitness magazines, clothing and underwear companies. What seems to be missing is a healthy norm. As gay and HIV+ people we are not exempt from the fat/thin dialectic. And some of it seems to be based in history. The problems of being at both extremes affects us as a population in general, and I think it heeds to be tackled from as many angles as possible.

I am just staggered by the number of over-weight (anywhere from obese to chronically obese) people I see every day. While I had a coffee at Brookside a couple of days ago, and at my local cafe today, I made a point of observing people coming and going (referred to as being a flaneur), and a good 90% of them were over-weight, and in the older age group where this is causing the most problems. Considering the constant emphasis on our increasingly over-weight population, and the regular medical bulletins on problems associated with obesity, nobody seems to be particularly alarmed about it. It really is frightening!

And the gay community is not exempt from this problem. In fact everything but! We have developed a sub-culture that celebrates over-weight men, which is certainly nothing worth celebrating!. Not only are they celebrated, but encouraged, and that is the most worrying aspect of this unhealthy adoration. An acquaintance of mine is a bear (I am not going to debate the rhetoric behind the terminology). The fact that his obesity is disguised by the use of cultural terminology, and the acceptance of this as “normal” has far-reaching implications that will only be changed by a huge cultural shift away from this behaviour. Eventually everyone subscribing to this culture will develop most, if not all, of the illnesses associated with obesity. There is no “might happen” about it. This acquaintance regularly posted pictures of himself in various stages of undress, and all the comments were of the “woof” variety. I have yet to read a comment from anyone encouraging him to start losing weight for the sake of his health. And I’m sure any negative comments would be met with a barrage of abusive comments about minding your own business, and what is “wrong with this normal guy”! Nothing like an unhealthy obsession to put the blinkers over peoples eyes. For the last twelve months I have kept my mouth shut – I really can’t see any sense in leaving myself open to abuse, even though a friends welfare is uppermost in my mind. I quickly flick past his massive underwear-clad posts on my newsfeed. After several months of health issues that had seen him avoiding medical help because he knew he would be told to lose weight, he has now been diagnosed with Type-2 Diabetes. Naturally, all the comments about his health update have been sympathetic. Not one person has said…you didn’t expect this! I think he is very lucky it is only diabetes. I was expecting a heart attack. Only months ago his status updates on FB informed us of his driving to a nearby supermarket to stock up on pavlova or marshmallow flavoured ice-cream. That has changed rather quickly. To his credit, he has taken the scare seriously, has changed his diet and is losing weight. He now also advocates change amongst his peers.

So, there are several issues here. One important one is the quite deliberate action of contracting Type-2 Diabetes, a condition we know is avoidable by adopting healthy diet and exercise lifestyles. The incidence of this type of lifestyle-related diabetes is rising at an alarming rate. To actively be a member of a sub-culture that actually promotes this lifestyle aberration defies imagination. The cost to the healthcare system from the combination of this group (which is rising), and smokers (which is decreasing) is going to be staggering, and we will all have to bear the costs of both these irresponsible and selfish behaviours. It has nothing to do with personal choice, as much as these groups like to harp on about it. As soon as your lifestyle choices start to infringe on my health, or my ability to easily access good, affordable healthcare, then your choices are no longer personal. They are far-reaching.

I guess one can’t address the issue of bear-culture without looking at how it has come into being. The opposite extreme also has a lot to answer for. I, for one, am sick of looking at guys on fitness and health magazine covers, in gay magazines, in modeling, in movies, in advertising and even in pornography whereby the now accepted norm is over-emphasised washboard abs, and over-developed musculature that has nothing to do with a healthy body image. The sudden move towards this portrayal of the male physique as “normal” is as frightening and concerning as the move towards obesity. We don’t seem to be able to find a happy, healthy middle road. Given that maintaining this type of body is both time and money consuming – does in fact involve almost daily doses of gym and supplements (and for some, steroids) – and is not sustainable in the long term, it is surprising that it is promoted as much as it is. Whatever happened to men wanting to look trim, fit and healthy? Why the move away from developing lean muscle mass? Why a move away from diet and exercise that is both low maintenance, and sustainable long term? I really have no answer to that, other than to hope it is just a current “trend”. It certainly makes no sense to me. At my own gym I regularly see guys hefting huge amounts of weights, grunting and groaning and banging their way through routines, with no different an end result than my routine of combined isometric/Swiss exercise ball/body weight exercises, a method that does take longer to show results, but is easier to maintain and add to over a long period of time. As to diet, in our household it has been low-sugar/low-fat/portion-controlled for so long now that it is now lifestyle.

So, back to my acquaintance. If he had listened to the warnings, if he had seriously thought about the consequences of his choices, the outcome may have been – positively – different. To date, I have seen no signs of his fan club encouraging him. Indeed, I have to wonder just how many of them will hang around, just how many will give him a “woof” if he were to suddenly become fit and healthy. It has become notable that if parents who are obese have children who are obese, it is seen as normal. Society as a whole really needs a good kick up the arse. We don’t need to spend as much as we do on fast-food; we don’t need to eat as much as we do – we don’t heed to fill our dinner plates; we have to stop making excuses like time-poor, time-consuming and too hard as far as healthy food choices and preparation goes; we need to stop seeing exercise as something hard; and we need to stop looking at each other and thinking “they are bigger than me, so I must be all right”. We need to think of the health implications of decisions we are making NOW! Do we want to be fat; have mobility problems; increased risk of diabetes; coronary heart disease; risk of stroke; circulation problems; high blood pressure; loss of flexibility; breathing problems; low bone density; joint problems and replacements due to just wearing the joints out from having to carry all the weight around; and a multitude of other problems all of which are preventable by some simple lifestyle changes. Given the choice of a fit and active old age, or a quick decline into bad health and misery I know what my choice is! There are 168 hours in a week. Surely it is not too hard to devote two or three of those hours every week to exercise.

The HIV community is also faced with problems of obesity. There is some research into the problem that indicates that for many long-term survivors the problem is a flow-on from the dismal days of the 80s and 90s, when emaciated bodies were a common site. To them, over-weight means healthy. It appears that the longer people are healthy, the more common it becomes to end up over-weight or obese. This trend signals a need for doctors to change their approach to caring for HIV positive people. It’s time to shift the focus to the prevention of heart disease, high blood pressure and weight gain.

HIV positive people who need to lose weight must follow general weight loss recommendations. You must eat a balanced meal that does not exceed your caloric needs, and you still need to exercise and avoid junk food. If you are overweight and HIV positive, where should you start?
The best place to start a weight loss plan is a food diary. Knowing what you are eating, how much you are eating, and when and where you are eating can help you adjust your diet and eating habits. Each time you eat, be it a snack or a full meal, write down what you have eaten, how much, and under what circumstances. For instance, if you eat a bowl of chili at a party, write down how much chili you have, what’s in the chili, and the circumstances surrounding your eating the chili. Was it your dinner? Were you hungry? Or was a bowl offered to you and you ate it so not to insult your host? Enter your meal into the diary as soon as you can after eating. It is difficult to keep accurate records if you wait too long after eating. Not to mention we often underestimate the amounts we eat after too much time has past.
Like anyone who is overweight, adjusting what and how much you eat is the first step to weight loss. An all-too-common problem is that we try fad diets and quick loss diets that may work in the short term but do nothing to keep the weight off. The key to an effective diet is one that teaches you healthy eating habits that will serve you a lifetime. By learning healthy eating habits, you will take the weight off and keep it off for the long term. The bottom line: Watch your calories, your fat intake, and your portion sizes to maintain a healthy weight. If you find your are eating for reasons other than hunger, talk with your doctor or a dietitian. They can help you lose the extra weight and keep it off — and in turn that will help you live a healthier live with HIV.*

I wish my acquaintance well, and I’m truly sorry that his lesson had to be learnt the hard way. Should I have thrown caution to the wind and spoken up? Truth be told, it wouldn’t have made an iota of difference. His fan club would have beaten me down, and the cries of “woof” would have drowned out the voice of reason. People only hear what they want to hear. Until these attitudes change, until these sub-cultures are given their proper place and are not seen as ‘normal’ nothing is going to change, and stupidly, more people will get seriously ill. Time for a rethink people, before it is too late.

*HIV dietary information from http://aids.about.com/od/nutrition/a/obesity.htm

Tim Alderman
(C) 2013

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An Outsiders Overview of the HIV “Industry”

This year marks, for me, 33 years of living with HIV/AIDS…though now it is just HIV. I consider it a landmark, as back in 1996 I was admitted to Prince Henry hospital with chronic CMV retinitis, chronic candida, chronic anaemia, wasting syndrome (48 kg and going down), 10 CD 4 cells, and no immune system, and was not supposed to leave…at least not under my own steam. I did, thanks to advances in medications at that time, very aggressive treatment and a lot of will power. I don’t give a fuck how negative many HIV+ guys are about life with HIV. For me, this was the great singular event of my life, a pivotal point that resulted in life-altering decisions, a mental overhaul, and the knowledge that there was a hell of a lot more to life than HIV. It altered the course of my life, and for better or worse I have never looked back.

I was a speaker for the Positive Speakers Bureau for 12 years before realising that when you continually tell a story you start doing it by rote. The time came to opt out before it becomes totally meaningless. I have also written for “Talkabout” magazine (the flag ship publication of Positive Life NSW – formally PLWHA NSW Inc) for 15 years, as a features writer and a columnist. I also spent many years on the Publications Working Group. As a writer I see my role as not only to inform people, but to provoke debate, at times to be opinionated, to raise questions, to address abuses and unfairness and to be, when required, controversial. Unfortunately, my time with “Talkabout” taught me that to get published in a HIV publication you need to walk the safe road. To be controversial is to be tolling your own death knell. Mind you, this censorship has nothing to do with the editors who, in my experience, have been nothing but supportive. Community Health and a certain AIDS council provide funding to the magazine, so to poke your nose into sensitive areas will ensure your censure and non-publication.

As a HIV+ person writing about HIV issues I have always found my hands tied. I have written two extremely controversial articles on HIV Issues over the years. One, on Options Employment Services using HIV clients as a free work force in the guise of “work experience” was so watered down after threats of suing PLWHA, the editor and myself (I truly wish they had) that by the time of publication was a mere shadow of its original fiery tirade…despite the fact that I had evidence of this going on.The manager even took me aside and “suggested” that I quieten down my opinions as they were providing a service to the HIV community. Shortly after, they went broke and disappeared. The second article was amongst the best pieces I have ever written, and covered the controversial area of bug-chasing (HIV- guys who deliberately have unprotected sex with HIV+ guys in the hope of contracting HIV). The magazines working group deemed that by writing about bug-chasing I may have been promoting it amongst a certain sector of the community. Considering that the practice is well documented, is acknowledged and exists I failed to see how being informative about it was in any way promoting it…oh shit! I forgot that community health and certain HIV organisations wanted to keep their heads buried in the sand about the issue…and they held the purse-strings. Censorship is alive and well within the HIV community and always has been. Want to tell the truth about what is going on or want to expose something? Not on their watch!

But despite this I continue to write, though I keep it to the more nondescript these days. I do enjoy being published! Since moving to Brisbane I have been phasing out my writing for “Talkabout” (which after 15 years of being published in pretty well every issue, has gone unacknowledged by the organisation itself, though not by the editors), and have started writing for QPP “Alive”, the magazine of Queensland Positive People. Same story, different place as far as funding goes, I’m afraid. Nothing controversial will be coming out of here either.

33 years ago at the start of the HIV shit fight, people never questioned anything about treatments, definitions, philosophies, or courses-of-action. We were in crisis mode and anything was better than nothing. We let a lot happen that in more sane times, in more accountable times, would never have been allowed to happen. This far down the line it is time to start asking questions, time to demand investigations and redefinition into many aspects of treatment, time to look back at some of the historical record and say “we were wrong”, and set the record straight. I no longer allow my doctor, or the HIV establishment, or the drug companies to dictate my path to health for me. I follow my own path, which is dictated to by knowledge and experience. 11 years ago I made a decision to halve my daily medications, and dose myself once a day only. Considering the negative impacts of huge amounts of HIV medication on the body I decided to take a risk. Well, this far down the line my health has never been better (though diet and exercise also contribute to that), my viral load has remained at undetectable, and not only has my CD4 count remained stable, it has in fact risen considerably. In fact, on my blood tests all other readings – except CD4/CD8 – are within range. Considering the recent emphasis on drug regime “compliance”, and considering my own circumstances, I am forced to ask – controversially, naturally – if the compliance issue is being driven by HIV specialists, or by the drug companies who stand to make a fortune out of HIV drugs. I will leave that question in the air for you to mull over and answer for yourself. This is a personal opinion, and one I am entitled to.

With the release of the brilliant “Dallas Buyers Club” the truth about AZT is finally out there. Pressured by my doctor to go on it in the latter part of the 80s, it is the one decision of my HIV care that I regret. I had read the report from the “Concorde” study in France, I knew it was described as “Human Ratsac”, yet I still finally gave in, and witnessed the immediate decline of my health as it bashed my immune system into submission. Needless to say, the long-term affects are disabling, and were not worth the risk. I still hear those who work in the HIV “Industry” – as indeed it was and still is – banging on about how it kept the wolf from the door – it didn’t! It poisoned and destroyed our immune systems, and left us vulnerable to opportunistic infection! It effectively killed many of us. As a drug to assist with maintaining CD4 counts it was a total and complete failure! And I am not the only one to say so! Ask any one who survived AIDS their opinion on AZT! Minor control of HIV did not start AZT situation. How the FDA in America handled the AZT situation and allowed wed the drug companies to dictate treatment options, block other drugs put out by rival companies, and chose to ignore or acknowledge research from overseas was a disgrace.

Even now in 2014 ignorance lives on. I continually hear, read and see HIV being described as AIDS! It is NOT AIDS – it Is HIV or HIV+! For fuck sake get your facts right! HIV is a viral infection, and AIDS are as the initials infer – Acquired IMMUNE Deficiency Syndrome! They are infections contracted by a breakdown of the immune system! The two do not necessarily go hand in hand, and you can have one without having the other. People undergoing aggressive cancer treatments which knock the immune system around are left vulnerable to the same infections triggered by AIDS in the plague years. Drug addicts also.

There are – and I am not being unkind nor ungrateful – those who have worked in the HIV Industry for too long. They are burnt out, and out of touch. If you only wander in HIV circles, you will only know that singular perspective. These people are indoctrinated, lacking in vision, and single-minded in their approaches to HIV and its management. They are blinkered, and only ever spiel forth statistics and the same information that we have heard for the last 30-odd years. They seem incapable of acknowledging different perspectives, new ideas, or revisiting and re-evaluating the old philosophies and education. Without an insurgence of new blood, HIV is in danger of stagnating and just at a dead end. Their current publicity of “Ending HIV” is a fantasy, and they know it. As long as HIV is in Africa, and in countries like Russia and China where education is almost non-existent or played down, HIV will never end. Empty words to seem to appear to be doing something, is just a waste of money. The HIV Industry seems to be very good at this. Always about 2-years behind actual need – just look at the employment needs of AIDS survivors in 1997/98 – when services were introduced they were way off course. You can only have so many programs that teach you how to write a resume, or attend an employment interview. Every single return-to-work session I went to do talks at had the same people in them. They just moved from one group to another, never putting the teaching into action. Where was the advice for people who wanted to be re-educated, or start a business, or upgrade a hobby,or buy into a franchise? It was non-existent. These people were the ones who fell through the cracks for lack of support and services. This has always been an ongoing problem. Naturally, the lack of funding is always blamed – though enough money to pay huge salaries – when really it is a lack of foresight, and imagination. Of course, everything is now wrapped up under the umbrella of Community Health, so any hope of imaginative thinking is now out the window. Those who hold the purse-strings control everything. It is a sad state of affairs. Groups like “Positive Life” no longer acknowledge their roots, nor do they move in the directions set down by the original founders. They are out of touch with their memberships, are indeed losing them. In the race to save money they are dropping resources that keep everyone active within the group. Even Positive Speakers Bureau inductees are now told what to talk about, and bang on about the same old messages and sprout the same old statistics. The trouble is…no one gets sick any more, so there is nothing to talk about for an hour. Perhaps it has outlived its use.

If one has to be totally frank, service delivery, information and services are no better now than they were 20 years ago! In many cases, they are worse. One friend of mine complains of the lack if easy access to HIV meds, and he has to spend a lot of time travelling to obtain them. He also comments on how he and his partner feel isolated and-reclusive due to no social groups to mingle with, and the constant heed to continually go through your medical record every time you change providers. Pretty sad state of affairs considering he only lives in Canberra.

Being my 33rd anniversary of life with HIV, and with World AIDS Day approaching I have written a personal retrospective of that period hopefully for publication around that time. It is 2,500 words long…not a lot of words for 33 years. If you are interested, follow the link. Not quite as controversial as this!

Getting On With It! A 33-Year Retrospective of Life with HIV/AIDS

For information on the Concorde Trial – http://aidsinfo.nih.gov/news/5/concorde-trial
Tim Alderman
(C) 2014

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Daily (Or When The Mood Takes Me) Gripe: Breaking the Internet

WTF with Kim Kardashion reportedly “breaking the internet” by showing her bum! My worked fine through the whole episode…and no, I haven’t seen it. Will google it now, and get back to you….*leaves WordPress and googles Kim Kardashion’s fat arse*

Well, wasn’t that interesting! Firstly a photo of her in a thong *shudders* with an inflatable bum..no bull. It’s very. ….fat.. Then a news item on a furore over a Facebook ban…who cares, Facebook, you are run by a pack off pricks anyway…of a photo of a birthing mothers bum (why you would even think of posting this is beyond me! Seriously!) yet allowed the photograph of Kimmy’s fat, photoshopped, oiled derrière! If it was really that size, problems everywhere from buying clothes to booking plane seats! As a gay man, I have one word for it…HIDEOUS!

If it was Hugh Jackman’s, or Ryan Gosling’s…Bradley Cooper’s…Brad Pitt’s…Matthew MacConahey’s, Zac Efron’s…Daniel Craig’s…then I’d say break the internet, as gay men worldwide race to download it

But let’s get to the crux of this “breaking the internet” bullshit…the Cult of the Kardashion’s itself! The hole in the ozone layer above their homes must be huge! If ever a family could lay claim to starting carbon pricing…this is the one! The phrase most associated with them is “a waste of oxygen”.

Now, one could say this sounds like sour grapes – and in a way it is, as I can’t stand any of them – but really, this plague on humanity started in 2007, when a nobody family doing nothing became an E! hit. Obviously a lot of people with the attention span of a gnat or with no taste in entertainment created this moldy snowball! Let’s face it, anyone who names all their daughters with “K” names (Kim, Khloe, Kourtney, Kendall & Kylie) leaves a lot to be desired in the originality sweepstakes! Not to forget the “momsger” Kris, famous only for marrying Bruce Jenner…an athlete and now motivational speaker and television personality, and whose looks deteriorated rather quickly.

But back to the arse – which belongs to the greatest waste of air – Kim. Doing nothing more than cashing in on being the biggest airhead in the series, her mother has now ensured that she has become the families “spokeswoman” and media mouthpiece! Along with her marriage to Kayne West, her shoes, clothing, perfume lines are all she has, and there are plenty around who do it better than her. She is nothing less than an example of how selling yourself on social media, and having the E! publicity machine behind you can make you mire famous than you deserve to be.

No Kim, your arse did not break the internet, however, it dud gain you more publicity. It would seem that being a media whore is something you are very good at,

Tim Alderman
(C) 2014

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Things My Mother Told Me!

I’m sure we have all received snippets of advice off our parents as we grew up…some of it sound, some not. For some reason they think they are the font of all knowledge – but I beg to differ. How much donyou relate tonthe “sound advice” demonstrated bellow?

As the years start to go by with increasing haste – the first thing she told me; she said they went fast, but didn’t indicate exactly how fast! I have time to occasionally reflect upon the fact that neither my mother or father really prepared me in any way for life. Now I am sure they were well intentioned, thinking in fact that they may have been, in some naïve way, protecting me. Now I find it’s not what they took the time to tell me, but what they left out. Seeing as how I spent more of my youth with my mother than with my father, I have to assume that this repository of misinformation is mainly her fault.

‘There are only two forms of take-away,’ she profoundly announced one Friday, as we tucked into the fish, chips and potato scallops that were a family tradition on this day. It didn’t matter that we weren’t Catholic – my father was, but didn’t practice – and that both mother and myself had been raised through the simplicity of Protestantism. You always had fish on Friday. Now this was one form of take-away. The other was – to the uninformed who were not raised during the 50’s – Chinese. Yep, that was it. Fish and chips and Chinese. None of your Greek, Italian, Lebanese, Vietnamese, Japanese, Indian or Modern Australian rubbish. No siree! None of that foreign muck. It took me nearly 18 years to realise what a lie this had been, though to my knowledge neither my mother or father ever ate outside those guidelines, and my mother is now in her 80’s.

‘You’ll be grey, part bald and wrinkly yourself, one day my boy,’ was another lie she told me with intent regularity. I am now 60, and despite a few creeping grey hairs, I still have a full head of dark hair. I can also still get away with being in my late thirties – oh all right my 40s! No mean feat…though perhaps good tenetics, mum! Just because my old man was bald and wrinkly by the time he was 45, what made her think that hereditary had it in for me as well?

Perhaps not having two kids may have assisted me, as she also constantly reminded me that ‘there was no greater thing you could do with your life than get married and have children.’ Mmm where can I go with this one! She was so impressed with the whole process that she fled home when I was a mere 11 years old, and my brother a whole 7. She then proceeded to give birth to my half sister 18 years later – at a time of her life when she should, by all rights, have been sitting back and lounging on Queensland islands, or spending her days lost in a pokie euphoria at the local RSL. I hope she doesn’t hold me responsible for any of that.

‘You must have a trade to get by on in life,’ was probably one of my favourites. I had been having gay fantasies since I was 9 years old, and here she is thinking I’m going to be a bricklayer, carpenter, electrician or plumber. Not likely, thinks I! I hide all my art works away, and only allow them to be viewed by one spinster aunt, who sort of understands what it is all about. Apart from anything else, it never really explains why she buys me dolls when I request them – and I’m not talking Ken-type dolls here. I like to dress them up. Perhaps she thinks I’m going to be a fashion designer, and hides the fact from my father for fear that he will disown me? Well, he did that anyway, and it was a long while before I actually ‘came out’ that I found myself disinherited.

So, I managed to avoid any of the butch trades, and even managed not to end up an accountant or anything else remotely embarrassing. Instead, I wasted 30 years of my bloody life in retail, hating every day of it, and wishing to God I had become a builder, even if it was just for the perving that I could do on the job. Now, I’ve sort of gone full circle. Though not a fashion designer, or an artist, I am a writer (and to make it worse – a poet!), and have finally found that not only is it a pleasure to be getting older, it is an even greater pleasure to be doing what I have always wanted to do.

‘Choose your furniture carefully. If you do, it can last you for most of your life,’ she would say as she wiped over the teak laminex sideboard and dining table. Now don’t tell me you haven’t copped this one! She might enjoy living with the same tacky furniture for 50 years, but I’ll be damned if I will. I still cringe at the recollections of going to visit her and my step-father at Toongabbie. It was like reliving my life at Sylvania in a time warp. Neither the style, nor the laminex had changed. And the lounge was a Harvey Norman spectacular, undoubtedly bought at a 40-hour sale. I breathe a sigh of relief as I bring an image of the ‘Freedom’ and ‘Ikea’ logos into my mind. I’ll change my furniture every five years, thank you all the same mum! Besides, nobody has an orange kitchen or teak laminex furniture anymore – or do they?

‘Go ask your father’ or ‘ Go ask your mother’ were the words of wisdom handed out to je by both if the disgusting subject of sex was ever brought up. I may have bern running around with a constant boner, and wanking like there was no tomorrow, but no gems of wordly wisdom to inform me if what was going on were forthcoming! Well, they did make one attempt by sneaking onto my room one night and leaving me some delightful pamphlets published by our local Congregational Church. Oh what a joy to find them the next morning! Having spent some time trying to decipher what the anatomical diagrams were about, I happily came to the conclusion that I had both a penis….AND a vagina. So much for that effort! I ended up letting nature sort it, though not before totally stressing mum out with a lot of very stiff sheets, and underwear. Fair retribution, I call that!

Despite all this, I have ended up a fairly well-balanced adult. I know! A bloody miracle isn’t it! I have aged well, live in a tastefully decorated Queenslander, eat in a large variety of restaurants serving many different cuisines, am a writer with a respectfully popular blog…and I’m gay! Now there is something they could never have advised me on, though perhaps my curiosity as to who these ‘bloody poofters’ were, that my father was always muttering on about, may have had something to do with it. Credit where credit is due! I found I had heaps of fun with the poofters, and still continue to!

Mum and Dad! Thanks for the advice…but I’ll leave it, all the same!

Tim Alderman
(C) 2014

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Walking In Time

Like most people, I take the city I live in for granted. Having always lived in and around Sydney, I don’t really give much thought to what makes it the city it is, what endears me so much to it, what creates this strange love affair with bricks, concrete, glass and steel.

I have always had a pretty good knowledge of the history of Sydney, and have walked much of its historic paths, and many lesser known alleys over the years. I travelled, at least for a while, over the Harbour Bridge on an almost daily basis. I have walked the pathways of the bridge many times, and have traversed it also in trains, and as a vague recollection, in trams. The bridge pylon has long been a favourite haunt as a place to escape the madding crowd – at least on weekdays – and as a place to meditate the beauty of my city, and be constantly in awe of the majesty of its harbour. The recently started climb up the actual span has added another dimension to it again, and a view of the harbour and city that is so beautiful it makes you weep. In my many journeys across it over the years, how often I wondered why I could not climb that arch! That dream is now available to all.

It is only as I have grown older that I have really started to get into the feeling of walking through time as I move about the city. Many others before me have walked streets that I walk, they are named after those who used them as far back as the first settlement. Suburbs are named the same way, as are homes, parks, bays, beaches, hills and mountains. Tongue-twisting Aboriginal names confuse many a tourist, and the buggerisation of their language is evident in many spellings of place names around the city. They have become not just names, but a patchwork of living history. I now go to Balmain knowing that at one time, the whole suburb was sold for five shillings. I know that Millers Point is just not a name, but an activity that occurred there, and that Brickfield Hill is named for the same reason. The Rocks is so because of rocks, Rushcutters Bay because they cut rushes there, Cockle Bay was renowned for its cockles and Double Bay because it is – yes – two bays.

The very trees and gardens in the Eastern suburbs hold history. Rocks bare graffiti from 1788. Archeology is all around, at places such as the dig at Suzannah Place in The Rocks, and more recently at Walsh Bay, and when the Conservatorium of Music was being restored (the old Government House stables). We no longer cringe at the suggestion of being from convict stock. There are many like me, whose families came out as free settlers in the mid-eighteen hundreds, who would beg, borrow or steal to have a convict history. It is only now that books are revealing the true facts of our past, the real people who were on the first fleet, the true conditions they endured to become the first white inhabitants of this land. This is a truth we no longer shrink from, but accept as part of our cultural colour. It is a shame we cannot be as proud of our treatment of indigenous cultures.

Up until I read John Birminghams ‘Leviathan’, I had always thought that John Macarthur died back in England. I had no concept of the hard time he had given his wife, nor that he died being declared insane. I had no knowledge of the back biting and factioning that went on between Governors, settlers and the Rum Corp, nor of the workings of the Unemployed Workers Movement of more recent history. I would not have known that free-settlers built homes in the highest areas of The Rocks, and that those living below them were engulfed by the sewerage running down the hills. Digging trenches around the lower homes did little to alleviate the problem – the sewerage just overflowed the trenches, and proceeded to boil and fester in the heat.
That I would never have been taught any of this at school does not surprise me. Growing up in the fifties and sixties in Sydney was a lot different to growing up here in the nineties and beyond. ‘Going to Town’ is no longer the event it used to be, where parents and children were dressed in their Sunday best, as though making a pilgrimage to the centre of their culture. My parents could not have imagined the squalor of the late nineteenth century, nor the depressions earlier in that time. Their parents lived on the legacy left to them from the depression of the twentieth century, and expected their children to carry the
same values forward. My apologies to them but they are wrong. I will not carry that guilt for them!

I love my city for having survived the warring factions, the depressions, the plagues, the demolitions, and the cultural and architectural history destroyed by a string of uncaring governments. I love her crowded streets, her bastard mix of architecture, and crooked, crazy alleys and lanes. Yes, she has grown as an old whore, but oh, a whore with so much class.

I was unbelievably impressed by the Olympic site at Homebush, and how much it was a measure of how far we have come. We have taken a toxic dumping ground and rejuvenated it into a suburban paradise. Twenty years ago, nobody would have given a damn about the Green and Gold Frog becoming extinct, let alone contemplating creating a space for it to thrive in. We now think about the spaces we are creating. No more just throwing up buildings as though there was no tomorrow – well, perhaps east Circular Quay is an exception to that rule. I see history being restored, and put to modern use. I trust we have got over the facadism of the eighties, and now choose to preserve buildings in their entirety, breathing into them a new life which they richly deserve.

Now when I walk up Palmer Street or Campbell Street in Darlinghurst, or drive down Old South Head ŷRoad, the names invoke a sense of history to me. They are not just boulevards, they are lives that have been lived, and continue to live as long as people care.

Tim Alderman
Copyright ©2014

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Dripping In Chocolate Pt.I

Sucked in!

Here you are thinking I’ve written an article on my love of chocolate and the sexually deviant things you can do with it, when in fact it is an article on nutrition. That is not to say that chocolate is not good for you in moderation, though a jar of chocolate body paint can cause all sorts of …outcomes, the least being weight gain.

Diet and exercise, diet and exercise! Don’t people like me love to bang on about it! Hardly a day goes by where at some stage you are not going to run into those three words. They are becoming a modern day dictum, and with the increase in morbid obesity (well, obesity in general really!) in modern society, expect to hear a lot more. It’s all well and good to roll your eyes, let your belt out another hole or two and start buying your clothes from the Big Men’s department in “Target”, but sooner or later you are going to have to pay the devil. If you are slim, don’t fool yourself into thinking that you will stay that way forever. Gravity will eventually have its wicked way, and it’s not going to be pretty!

A lot of the blame for our current move towards junk and fast food fixes is media and advertising driven. They keep telling us how time-poor we are, how busy our lives have become, and how we need to make things easier for ourselves. Fast food chains upsize deals and give you more and more junk for your buck (look for the healthy alternatives if you find yourself in one of these establishments.Everyone has them now). Cooking programs tell us that to be good in the kitchen we need a degree in Frnch cooking, every kitchen appliance that has ever been made, three hours to prepare a simple dinner, and a cuisine vocabulary that would befuddle the best of us. I’m a qualified chef and I wouldn’t (or couldn’t) be bothered with a lot of the kitchen antics that we are subjected to on television. Quite simply, the pure joy of food and cooking is being taken away from us.

And we can’t overlook the obvious…our food culture is tied into tradition, and our families. One is left feeling that the advent of “meat and three veg” as a basis for our meals arrived with the convicts, and hasn’t changed a lot since. Fortunately as a counter-balance our love affair with Asian food ever increases, and it is perhaps here we will find our way to a healthier diet.

For those contemplating a healthier lifestyle, especially losing weight, are unfortunately going to find that it is useless to exercise without changing your dietary habits, and vice versa. There is NO easy fix, so the desire to move forward and improve your lifestyle must first and foremost be a positive drive and desire on your part. Diets are, at their best, a short term solution to weight loss and at their worst are capable of actually damaging your health. They are alsounsustainable in the long term. The whole key to healthy eating is very simple…common sense, and not depriving yourself of the things you enjoy but eating them in smaller quantities at longer intervals. You may not believe me now, but eventually you will lose the desire to eat a lot of these things at all. Good, healthy eating is about variety, what you cook, what you put in it, how you cook it and how much you serve. Recent advise suggests that we are better off eating 5-6 small meals a day instead f the three large meals we currently eat. And don ‘t forget; breakfast IS the most important meal of the day!

HIV people face a number of problems as far as nutrition goes, and like the condition itself varies from person to person. We are beginning to understand that long term dosing with our medications can potentially have serious health implications. You dan’t take the number of pills we are prescribed over a long period of time (for many of us it is going to be a period of 40+ years) and not expect some problems, especially coronary, renal, mental, and the possibility of cancers. It worries me, so I’m sure it worries you! I have made a lot of drastic changes to my life, albeit at this late stage when I’m approaching 60. It is no longer good enough to shovel in the meds, put on heaps if weight, eat unhealthy food, sit around doing nothing and expect everything to tick along nicely forever. You simply can’t live from blood test to blood test, and expect things to get better if you don’t take the actions to help improve the situation.

So as an ageing HIV demographic, what are the things we need to concern ourselves with, and keep an eye on? Well, the sme old culprits that we have all been trying to pretend aren’t the problem. High cholesterol (the bad type); too much fat, sugar and salt in our diet; too much processed food especially in the form of quick-fix meals, canned and bottled pantry items; way too much fast food of the unhealthy kind; and a tendency to see cooking, especially just for yourself, as a chore. Few people stop to think that it takes about 15-30 minutes to heat a ready-made meal. You can make a healthy salad with grilled or pached chicken and oil-free dressing, or a stir fry in the same time…and be a lot healthier for it. I know from personal experience in the past that a daily intake of cigarettes, alcohol and shit food is not going to give me the nutrition to lead an active, fulfilling life…yet still we do it – or at least USED to do it. So I’m her to give you some strategies for change, simple effective ways to shed the kilo’s, and get those blood test results scoring an A+…and it ain’t gonna hurt a bit. Well, maybe a little bit!

Tim Alderman
Copyright 2014

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Have I Missed the Joke?

This article was written in 2001, but the sad thing is that HIV quackery, cons and bogus inventions are still going on. There is no end to the lengths some low-life’s will go to to make money, and it is not just the HIV community they target. This is a few of the rorts going on back when this was written.

Type the query “HIV/AIDS+hoaxes” into the Yahoo search engine and see what comes back. You may be surprised to find that it will come back with 187 matches, and that is just for HIV/AIDS.

To follow all these links, or only to select a couple for investigation takes you into another world. You can look into fraud on a one-to-one basis by people who are simply unscrupulous, treatments and therapies that are on the verge of frightening, an underground antiretroviral drug trade, suspect complementary therapies, internet and email chain letter HIV/AIDS hoaxes, and urban myths.

The home page of the ‘Texas AIDS Health Fraud Information Network’ (TAHFIN(1)simply states that “The HIV epidemic has created business opportunities for many people. In many cases, people and companies pursue these opportunities with the sincere intention of helping while staying within the bounds of the law and maintaining fiscal integrity. The same motives can sometimes lead to harm even with the best of intentions. In some cases, the motive is to simply make a buck regardless of the consequences to those affected. The latter is what opens the door to fraud.” The Quackwatch site expands this further by saying that “The fact that HIV causes great suffering and is deadly has encouraged the marketing of hundreds of unproven remedies to AIDS victims. In addition, many companies in the ‘health food’ industry have produced concoctions claimed to ‘strengthen the immune system’ of healthy persons…many of the expert quacks in arthritis, cancer and heart disease have now shifted into AIDS” and that “…every quack remedy seems to have been converted into an AIDS treatment.”(2)

To explore all these areas, and the much vaunted question of ‘Does HIV cause AIDS?” debated on sites such as ‘Nexus’(3), ‘Is AIDS man-made?’ and the hoax of a new air-borne strain of HIV would require a lot more than the word allotment for this article.

The ‘cures’ observed on the Quackwatch site have included processed blue-green algae (pond scum), BHT (an antioxidant used as a food preservative), pills derived from mice given the AIDS virus, herbal capsules, bottles of “T-cells,” and thumping on the thymus gland. There is also Autohemotherapy – a worthless procedure in which a sample of the patient’s blood is withdrawn, exposed to hydrogen peroxide and then replaced. Add to this the entrepreneurs who have marketed covers for public toilets and telephone receivers with claims that this will prevent you from contracting the AIDS virus, and you have some idea of exactly what to expect.

Over at the “Educate-Yourself”(4) site, you will find yourself in for a real education. There are articles on ‘low voltage electricity’ to make HIV inactive. Dr Bob Beck designed the blood electrifier. The site claims to have seen laboratory reports and Institutional Review Board studies that seem to clearly support claims made by Dr Bob Beck that his blood electrification device has caused ‘complete spontaneous remission’ in literally thousands of AIDS patients, cancer patients, and chronic fatigue sufferers, to name just a few. There appears to be a lot of ‘claims’ and no documentation to support them. The two methods used to treat AIDS patients consist of either removing a small amount of blood, electrifying it then returning it to the body, or sewing a miniature electrifying power supply along with two tiny electrodes directly into the lumen of an artery. The small unit had to be moved every 30-45 days, as scar tissue and calcification occurred around the implant unit, and could lead to artery blockage. The site also reports that hundreds of HIV sero-positive patients have been converted to HIV sero-negative with the use of ‘Ozone Therapy’. “Help is available to AIDS patients right now but the medical establishment is ignoring it” the site informs us. It does state, however, that ‘no evidence for the claims exists in RELIABLE scientific literature.

On December 22, 2000 the FDA(5) issued a safety alert on unapproved ‘Goat Serum Treatment” for HIV/AIDS. This unapproved product, produced in goats as an antiserum against HIV/AIDS, was already the subject of a ‘clinical hold’ by FDA, prohibiting its use until previously existing safety questions are resolved. (Since researching this article, this hold has now been lifted, and the Goat Serum Treatment is undergoing clinical trials).

In 1999, the FTC (Federal Trade Commission)(6) issued a warning about bogus Home-Use Test Kits for HIV. The kits were advertised and sold on the Internet for self-diagnosis at home. The kits showed a negative result even when testing a positive sample. The kits could give someone who was actually HIV+ a false impression that he/she was not infected. Some of the ads stated that the World Health Organisation and the FDA had approved the kits for use.

As far as AIDS urban legends go, the one about ‘AIDS Mary’(7) is probably the most famous. The legend is that the morning after a one-night fling, a man walks into his bathroom and finds the words ‘WELCOME TO THE WORLD OF AIDS’ scrawled on the mirror in lipstick. The legend is also known as ‘AIDS Harry’ (obviously depending on who is telling the story), and it was begun back in 1986, and basically expressed the fears surrounding HIV/AIDS at the time. This legend was actually used as a defense in a criminal trial in 19908. Jeffrey Hengehold murdered Linda Hoberg after sleeping with her, then being told by her that she had AIDS. There was no evidence to support the allegation, as Hoberg had been cremated, and Hengehold had never tested positive. In a similar vein, a 1998 Internet urban legend stated that AIDS-infected blood is being injected into unsuspecting moviegoers and young people dancing in bars or at raves(9). Somebody’s (no name mentioned) co-worker went to sit in a seat at the cinema, felt a prick and found a needle poking up out of the chair with a note on it saying “Welcome to the real world, you’re HIV POSITIVE”. “It’s all false,” said Sgt.Jim Chandler, a Dallas police spokesman. “This has not happened, and we would ask people to stop forwarding this message to their friends because it’s creating situations where police departments and emergency personnel are having to respond to inquiries about this hoax.”(10) Other reports of needle sticks at bars and raves were investigated, and found to be false.

Even the seemingly innocuous world of email communication has not been spared its share of AIDS hoaxes. On the 7th December 1995, the following email chain-letter was sent to J.Beda(11) by several of his acquaintances. It had an email address at SYR.EDU, and in the SUBJECT: aids.
>For a class project, I was wondering if this could be passed on to prove
>a point. In my human sex class, we learned that if somebody has received
>the HIV disease, and they don’t know about it, they could pass it onto
>people who they don’t even know.
> Could you all pretend that I have HIV, and I gave it to you.
>Then could you pass it onto your friends? Let’s see if the entire
>email population could get infected by me alone.
> Please remember that this is a lab experiment. I have to say that I am not intending to offend any one in any way.
> By the way, don’t erase this or the forwards from your computer.
>
>Thank you
>Young Bradley
People pointed out the parallels between receiving this sort of email and having nonconsentual, unprotected sex with a knowingly infected partner. This is commonly known as rape, and potentially as murder. The recipient pointed out to the sender some of the faults of the project, not the least of which is that chain-letters are a BAD THING no matter what the cause. The project also had problems with its implementation in other areas. It never ends. When is the school project finished? It contains no instructions on where to look for more information. It contains nothing indicating who was responsible, or who to contact if there are problems. It does not offer any education on HIV/AIDS. Apart from anything else, sending out this sort of email is against the terms of service of every computer system ISP.
Generally, emails of this type take one of two forms: those that promise/threaten good/bad luck, and illegal pyramid-scheme letters that promise to make you lots of money.

The most recent scam is one to come out of Thailand, and notified to all TAHFIN(12) subscribers on 27th August 2001. It tells of 5,000 HIV-stricken people sitting a soccer stadium for several hours to collect a drug called V-1, a supposed cure for HIV/AIDS. Unlike conventional HIV/AIDS cures, it works on the digestive system instead of within the blood stream. The apparent food supplement is distributed free. There are a reported 755,000 AIDS patients in Thailand, which is one of the major reasons the scam has managed to succeed in a country where the average earnings are $2,000 per annum. Distributors are touting the cure as ‘an oral vaccine’. The Thai Ministry of Public Health tested the drug on 50 people, and found it to have no effect whatsoever, positive or negative. V-1s creators rebuffed Ministry officials who requested the drug be tested by the CDC in the USA. It is feared that soon V-1 will be marketed in other emerging nations who are being overwhelmed by AIDS, and have few resources. It is felt that if governments are put under pressure by the mass-hysteria these sorts of cures create, they will just allow nothing to be done to halt the distribution. Salag Bannag, the distributor of the little pink pill claims that over 100,000 people will have received the drug by the end of this year.

Now, we haven’t touched Low Frequency Sound, Induced Remission Therapy, Colloidal Silver, Bio-Engineering, T-Up or a plethora of other products available on the internet, and through quacks masquerading as practitioners. This article is not attempting to stop people trying alternative therapies. What it is saying is please be careful! Do not part with your precious money for anything unless you have investigated any claims thoroughly. Don’t be taken for a sucker. In Australia, any drug or item that is promoted for use by the general public must not only contain details about what the product actually does, but also what side-effects it can cause. The most blatant element of a lot of the products that are advertised on the Internet is that they only state the positive effects of the drug or devise, and that no side-effects are reported. This sort of situation should automatically make you think twice about the efficacy of a product.

In an attempt to tighten up legislation, and make people aware of their responsibilities when promoting drugs or gadgets, in 1998 the FDA proposed to issue new regulations pertaining to the dissemination of information on unapproved uses for marketed drugs, including biologics, and devices.

Of cause, this only becomes relevant if you are caught!

Tim Alderman
Copyright ©2001

1 http://www.tahfin.org
2 http://www.quackwatch.com
3 http://www.nexusmagazine.com
4 http://www.educate-yourself.org
5 http://www.fda.gov
6 http://www.ftc.gov
7 http://www.snopes.com/horrors/madmen/aidsmary.htm
8 Ibidem
9 Ibidem
10 Ibidem
11 http://pobox.com/~j-beda/chain-letter.htm
12 http://www.tahfin.org

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